In the years since the best-selling book “The Immortal Life of Henrietta Lacks” made the issue of informed consent and patient privacy a national topic of conversation, scientists and clinicians have continued to struggle to develop a comprehensive methodology for collecting and sharing data from patients and research subjects without jeopardizing their rights.
The University of California, San Diego’s iDASH project aims to address some of these fundamental challenges to research progress with its most recent series of “Driving Biological Projects” (DBPs) … Read the full story from the UCSD Newsroom
Lead investigator in the iDASH project is Lucila Ohno-Machado, MD, MBA, PhD, professor of medicine, founding chief of the Division of Biomedical Informatics and associate dean for informatics and technology at UC San Diego.
Among other research and education projects directed by Dr. Ohno-Machado are the Biomedical Research Informatics for Global Health training program and the biomedical informatics component of the UC San Diego – Universidade Eduardo Mondlane Medical Education Partnership Initiative. | See all DBMI research projects
Dr. Ohno-Machado joined the UC San Diego faculty from Harvard Medical School in 2009. She was elected to the American Society for Clinical Investigation in 2010.
- Dr. Ohno-Machado’s academic profile
- UC San Diego Receives Two Major Biomedical Informatics Grants – UC San Diego press release.
- Introductory webinars for the three iDASH 2013-2015 Driving Biological Projects:
- Partnership for Epidemiological Research in Hispanic/Latinos: Research Literacy to Consent to Bio-behavioral Longitudinal Research (recording) – Sheila Castañeda and Greg Talavera, San Diego State University, August 22, 2013
- Privacy Preserving Analytics for Kawasaki Disease in African-Americans (recording) – Jane Burns and Jihoon Kim, UC San Diego, August 6, 2013
- Informed Consent for Biospecimen Collection and Data Sharing among Low-income, Uninsured and Underinsured Women: Is it a Matter of Trust? (recording) – Elena Martinez, Moores Cancer Center, and Ian Komenaka, Maricopa Medical Center, August 2, 2013
- Biomedical Research Informatics for Global Health Training (BRIGHT) Program – press release
- UC San Diego – Universidade Eduardo Mondlane Medical Education Partnership Initiative (MEPI)